My polio story is perhaps not a typical one. It must have begun
somewhere near my home in the Melbourne suburb of
Carnegie when, at the age of seven years, I
contracted the virus in an unknown place and at an unknown time. The
first sign of trouble was at breakfast on the first Saturday of the
May school holidays in 1952. According to my mother, I had been
uncharacteristically fractious at this time, although I have no
memory of this. What I do remember is painting some toy cars with
silver paint later that morning. I began to feel strange and
managed to tip over the paint container. Feeling unwell and upset
I went inside and uttered the time-honoured words `Mum, I don't feel well'
or `Mum, I feel sick' or something along those lines. This was at
a time when doctors routinely made house calls, even at weekends, and
my mother wanted to call the family GP immediately. My father objected,
saying that the boy was only getting a cold, or something like that.
Apparently, my condition worsened and the doctor arrived after lunch.
I was in bed by this time and don't recall his initial visit but
he summoned a specialist, Mr Hughes, and I can remember having to
push against the palm of his hand with my thumb, but not much else.
I later learned that Mr Hughes was of the opinion
that the infection would be either
polio or meningitis but he would have to wait until further symptoms
developed before arriving at a definitive diagnosis which turned out
to be polio. For some reason I was not sent to the Fairfield Infectious
Diseases Hospital but was nursed at home by my mother who, as was
common in those days, did not have paid employment outside the home.
I remember nothing more of this period but was later told that I had
been feverish and delusional for a few days. My first memory after
that initial day was being carried by my father and placed in the
bath. This was probably a couple of weeks after the day described above.
He told me that I had had polio, but this meant nothing to me. I had
heard the term already but had no concept of what it implied.
It was only about a month after that Saturday that I returned to school and
I can recall standing to attention at Monday morning assembly and being
asked by a kindly teacher if it was true that I had contracted polio.
It remains a mystery as to how I did get the virus as there were no other
cases at the school, nor in surrounding areas, at the time.
The Aftermath
My education proceeded, seemingly unimpaired by my absence of a
few weeks. The family GP was one Horace Oswald Johnson (or Johnston,
I cannot recall now), a dour Scot in his fifties who had seen many polio cases
in his career. He was known to his patients and to hospital staff as
`Ozzie', but not to his face of course. Anyway, he told my parents that their
son would not be as energetic as other children and would need a lot of
rest. And so it proved to be. I would often go straight to bed after
returning from school in the afternoon and would frequently be too tired
to go to school on some mornings. This would sometimes be a
convenient excuse for avoiding unpleasant classes such as woodwork on
Wednesday mornings of the first two years of high school. Fortunately,
my parents had kept my report cards from high school and I recently
looked at them. The number of days missed per term kept decreasing
as time went on and was at a normal level by the time I had reached
fourteen or thereabouts.
In 1956 I commenced secondary school at McKinnon High School (now
called McKinnon Secondary College) which
had opened in 1954 to meet the needs of the growing post-war
population in the burgeoning south-eastern suburbs of Melbourne. Due
to my mother's asthma, we moved to Mildura in May 1959 on medical
advice. This proved to be a good move as the warmer, drier climate
was much better for her than that of cold, wet Melbourne. Mildura
High School (now called Mildura Senior College) was a good school
and I benefited from the small class sizes, particularly in the
final two years.
My father was a rather impetuous man (a trait present in his father
and even in myself) who tended not to think of the long-term consequences
of his decisions. This was evident in the choice of Mildura as the
place to which we should move when Adelaide, Perth and even Toowoomba
were suggested as alternatives. The problem was that it was taken
for granted that I would go to university and would be the first
person in my family to do so. Now, I was an only child who had nearly
died at birth and had survived polio. This made my parents excessively
over-protective. They were insistent that we all moved to a city
with an established university and a suitable climate.
Adelaide was the obvious choice
and we moved there early in 1962. If only he had thought this matter
through in 1959, we would not have had this second disruption.
Anyway, my years at the University of Adelaide and later at Flinders
University were productive ones and I later went on to Cambridge (without
my parents!) to do a PhD. After that, I was at the Woods Hole Oceanographic
Institution on Cape Cod for 17 months before returning to Australia late in 1972.
The Effects of Polio
The physical effects of polio on my body were not severe. It does not
appear that my case
was one of paralytic polio and I did not receive any immediate
rehabilitative
treatment. My legs are perhaps a little weaker than I would like
but the main physical aftermath of polio is kyphosis and scoliosis
of the spine. Scoliosis is the one which has caused me the most
difficulty over the years. Actual pain is rare but daily discomfort of
varying degrees as well as disruption of sleep are the norm.
The discomfort is usually relieved by lying on
the floor or ground and rolling around, often to the amusement of
onlookers - their problem, not mine!
The effects of polio on my body are more of a nuisance than anything
else - inconvenient, sometimes limiting, but not a major impediment
to day-to-day living and I have never used them an excuse to avoid
responsibilities of various kinds. I have learned to live within
the limitations imposed upon me by my situation.
Until quite recently, I have participated in physical activities of
various types. At Cambridge, I even rowed for my College in the
`bumps' races two years running. This was probably unwise but was
quite enjoyable at the time. In the 1970s I played squash quite
regularly and even managed to break my
arm playing soccer. From 1979 until about 2008 I played tennis more
or less every week until knee problems dictated that I stop. At
the same time I also stopped regular bushwalking for the same
reason.
Of greater consequence for me was the almost permanent propensity
to tire easily and the consequent lack of energy and the need for
a lot of rest. Throughout my working life as a university lecturer,
I would routinely spend one day each weekend resting in bed and it
was a luxury to be able to sometimes come home from work
early and go to bed for an hour or two. One of the many good things
about retirement is that I can now get as much rest as I need (or
should that be want rather than need?).
Physiotherapy
Although I did not receive any rehabilitative treatment immediately
after recovering, my parents later sent me for some physiotherapy.
The first was essentially back massage from one Percy Pearce in Kew who,
amongst other things, ran the Melbourne branch of the Bjelke-Petersen
School of Physical Culture. To answer the obvious question: no, this
organisation was not associated with that other polio survivor Sir Joh but had been
founded in Queensland by one of his relatives.
In Mildura, I went to a Miss Pat Maloney for physio but
I cannot recall what she actually did. For
the first couple of years in Adelaide, I attended a government clinic
somewhere in the suburbs which was eventually closed. One of their
treatments was refered to as `the gallows' and was an attempt to
somehow straighten the spine by attaching a harness around the head
while the patient was in a sitting position. This harness was attached to a rope
which was looped over a pulley. Weights were placed on the other end of the rope
and the victim, er patient, thus had their neck stretched for about twenty
minutes. It was uncomfortable
and almost certainly ineffective. Their other line of attack was to force
the patient to sleep on his back. At first, a sort of corset was sewn on to
the bottom bedsheet and fastened around the victim's chest.
After a few weeks of this,
the victim was supposed to be accustomed to sleeping on his back and was
ready to proceed to stage two which required him to sleep on a wooden
bench with boards sticking out vertically which prevented him from turning over.
It was impossible to sleep like this and my parents decided to abandon this
part of the treatment since it was interfering with my studies. The gallows
and other more benign stretching exercises continued on a weekly basis
until this clinic closed. Treatment was continued by a physiotherapist
on North Terrace just opposite the University of Adelaide. Fortunately, she
had no gallows and just gave massage and normal stretching exercises.
This sort of thing continued at Addenbrookes Hospital in Cambridge for
a while but eventually they decided that they did not want to see me any more.
Apart from a bit more back massage for a couple of years after I returned
to Australia in 1972 I have not had any polio-related physiotherapy since then.
The Present Situation (October 2011)
I do not consider that I have post-polio syndrome. Certainly, I don't seem
to have any of the characteristic features of PPS. The problem of
overwhelming exhaustion is no worse now than when I was young. However,
I do seem to be having more back trouble which now seems to be concentrated
on the right side of the spine between the shoulder blades.
This is where the lateral
curvature of my spine is greatest. Many years ago, the pain or discomfort
seemed to be located on both sides of the spine just above the pelvis.
Of all the polio survivors I have met in the PPN, I think I must be just about
the one whose body has been least affected by polio. For this reason,
I believe that my polio story is not a typical one, but one worth telling
all the same.