Post-Polio Network
(NSW) Inc - Links
Post-Polio Support Groups - around Australia and around the world
Post-Polio Support Groups on the net, both Australian and international
International Post-Polio Support Groups |
IPPSO is an international support organization established to assist persons experiencing PPS, their families and friends. IPPSO is also a site maintained for the purposes of support, education, communication, and as a forum to meet other people with PPS around the world. IPPSO only addresses the needs of those persons who are survivors of Polio and PPS, their families and friends. |
The British Polio Fellowship (BPF) is a registered charity with around 9000 members. We were one of the first organisations of disabled people and have acted as a voice for people who have had polio for over half a century. We are democratically-run and governed by our Management Council, the majority of whom are people who have had polio themselves. We provide a wide range of information and advice on your rights, housing issues, equipment, Self-Management courses, the late effects of polio/post polio syndrome etc. The BPF is divided into nine regions and has a network of about 50 branches and groups. |
An Information Service for Polio Survivors & Medical Professionals. The core of this site is an online library of well over one hundred full text articles on Post-Polio conditions, many from peer reviewed medical journals. The library is catalogued to assist reading. A categorised directory of Polio resources is also provided with every entry having a description. The bi-monthly LincPIN Post-Polio information newsletters are available in the Networking section. |
Post-PolioUK began in 1994 in an informal way when Fred Griffin, a Leicestershire Polio survivor contacted the local newspaper, inviting any other local Polio survivors experiencing puzzling new health problems, to meet for a coffee morning. From these informal beginnings, the group evolved. In 2003 we became Post-PolioUK, reflecting changing membership. We have no paid staff, no offices, and a tight focus on information sharing and mutual support. |
The Post Polio Support Group (PPSG) originated from a meeting of three Polio survivors in 1993. The object from the outset was to assist people who were experiencing the Late Effects of Polio including Post Polio Syndrome. A significant problem for these people was the lack of information available to them about their condition. Since our establishment the PPSG has provided information to polio survivors, the medical professions, the media and other interested parties. We have worked to improve the general situation of survivors in Ireland. We also aim to raise awareness among polio survivors themselves, and the broad medical profession about the problems that some survivors now face. |
PTU, the Danish Society of Polio and Accident Victims, is a consumer-driven association of and for people experiencing restricted mobility and whiplash injury. The society’s target groups are people suffering polio-associated impairment, injuries to the spinal column, paraplegia and tetraplegia, spinabifida, injuries resulting from traffic and other accidents, and whiplash injury. |
The Post-Polio Support Society was initiated in 1987. It has 23 district groups which operate autonomously, but national character is provided through the board of management. The Society aims to provide support for those who have had polio. In particular to collect and distribute information that will enable members to udnerstand and moderate the changes occurring in their conditions, and to inform medical practitioners of post-polio syndrome and update them on advances in research and treatment. |
The Post-Polio Network RSA offers support and information to African polio survivors. Membership is not restricted to South Africa but is open to all African countries. |
PPASS provides information and support to polio survivors in British Columbia, Canada. |
Education is the core function of Polio Canada. In addition to distributing information to people who join the registry, Polio Canada also offers resources on the late effects of polio and post-polio syndrome. When you are coming to terms with new symptoms, it is important to know that you are not alone. Polio Canada’s support groups organize local meetings and seminars, provide information, support and encouragement. |
Polio and Post Polio Syndrome educational information for survivors and their physicians. Printable articles, newsletters, and biographies are available. |
A site providing information and support to Quebec's polio survivors (in English and French). |
Provides information and support to polio survivors in the area. |
The Central Virginia Post Polio Support Group was organized in 1986. Our group meets regularly to offer support, provide meaningful education and encourage advocacy for those survivors of polio who are now experiencing Post Polio Syndrome (PPS) and the medical community. Our members strive to help others in seeking an appropriate diagnosis, finding effective treatments, and assisting with necessary life style changes despite the increase of limitations caused by PPS. Spouses, family and friends of those with PPS are equal members and partners in our group. |
The Florida East Coast Post-Polio Support Group meets five (5) times a year – January, March, May, September and November. We discuss many post-polio related problems, share possible ways to deal with those problems, and to encourage each other. We also invite health-care providers and other health professionals as speakers, adding to our knowledge on ways to help ourselves. There is a worldwide network of polio survivors who share information concerning research, new equipment being developed, and new bracing techniques. We also keep track of conferences that give polio survivors the chance to meet with each other and with knowledgeable health professionals. These conferences give us a chance to feel less alone knowing that there are others experiencing the same symptoms and problems. |
Founded in 1990, the mission of the North Central Florida Post Polio Support Group is to inform and educate polio survivors, families, friends, physicians, therapists and suppliers about post polio syndrome (PPS). We are a not-for-profit support group reaching out to well over 800 survivors of polio within a 100-mile radius of Ocala, Florida, and now to hundreds of additional survivors throughout the world. |
The Polio Connection's mission is to find and alerting all polio survivors as to the 'Late Effects of Polio'; to do everything they can to eliminate future cases of Polio; to develop a polio movement into a polio Advocacy Group; and to do all they can to secure funding for research on the 'Late Effects of Polio' and to meet their other needs. |
Post-polio syndrome - the new challenge of an old disease. Polio Experience Network offers information, inspiration, ideas and resources to help you understand polio and post-polio syndrome, and to confidently manage life with it. Or to help a loved one cope with the effects of polio. We also offer resources for students doing research on the disease. We even have some links about disability in general. Browse - we should have something to help. |
PPASS MN exists to raise community awareness of polio and post polio syndrome, to provide education and support to individuals, their families, and caregivers by assisting in the founding and organizing of local support group chapters throughout the state. The activities of PPASS MN and its chapters, educating and working in conjunction with the medical profession, increases the opportunity for those living with the effects of polio and Post Polio Syndrome (PPS) to have access to a broader range of support resources. |
The Polio Outreach of Connecticut is a group of polio survivors and our friends and families who exist for the purpose of supporting each other as we struggle with the aftermath of polio. The mission of Polio Outreach is to enhance the lives and independence of Connecticut’s polio survivors by promoting education, support, and information, while raising community awareness of polio and post-polio syndrome. The site contains issues of The Polio Messenger, the quarterly newsletter of the support group. |
Back to Link Categories Page | Add Link