Post-Polio Network
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Polio and Post-Polio Books, Videos, Information and Other Resources
Books, videos, information and other resources, both Australian and international, for polio survivors
International Polio and Post-Polio Information and Other Resources |
Information for polio survivors, home mechanical ventilator users, and health professionals, including a comprehensive listing of Post-Polio Support Groups and Clinics around the world. Post-Polio Health International's mission is to enhance the lives and independence of polio survivors and home ventilator users through education, advocacy, research and networking. |
Post-Polio Syndrome Central: Search/Browse this complete, comprehensive, easy to use and up-to-date listing of internet Post Polio Syndrome Resources - weekly polls,surveys and original content added daily. |
Shoulder pain is common in the post-polio population. Similar symptom patterns are seen in older adults who have no history of polio, but who do have lower extremity impairments. The shoulder pain is thought to result from repetitive use of the arms to assist with weight-bearing during mobility and transfer activities when there is significant weakness in one or more of the muscles in the lower extremities. The increased stress on the upper extremities during these activities results in symptoms of shoulder overuse. The purpose of this manual is to help polio survivors become more aware of the behaviours that can cause shoulder overuse and some of the treatment options that are available. |
A statement about exercise for the survivors of polio by Post-Polio Health International. Advising all polio survivors not to exercise is as irresponsible as advising all polio survivors to exercise. Current evidence suggests that exercises are often beneficial for many polio survivors provided that the exercise program is designed for the individual following a thorough assessment and is supervised initially by knowledgeable health professionals. Polio survivors and their health professionals who are knowledgeable about the complete health status of the individual survivor should make the ultimate decision on the advisability of exercise and the protocol of the exercise program. |
This is a detailed article by Sunny Roller MA and Frederick M Maynard MD about post-polio exercise. Written in 2002, they say that more is known now about exercise for persons who had polio than fifteen years ago. There have been a variety of studies conducted by superb and caring scientists, along with numerous personal accounts from polio survivors, themselves, which warrant a new way of thinking about exercise. |
Accepted criteria for diagnosis of postpolio syndrome (PPS) are a prior history of poliomyelitis, a stable period after recovery, a residual deficit of the initial polio, new muscle weakness, and, sometimes, new muscle atrophy. Fatigue and muscle pain need not be present to meet the criteria for the syndrome. |
Basic facts about PPS for polio survivors' doctors, family & friends: the site of Dr Richard L Bruno, Chairperson, International Post-Polio Task Force; Director, The Post-Polio Institute; The International Centre for Post-Polio Education and Research Englewood (NJ) Hospital and Medical Center, USA. |
Polio and PPS educational AUDIO tapes, The Post-Polio Institute, The International Centre for Post-Polio Education and Research. How to STOP Being Vampire Bait: Your Personal Stress Annihilation Program,downloadable articles on PPS. |
Articles by Dr Richard Bruno and Dr Nancy Frick and their colleagues on all aspects of post-polio. |
For more than 10 years, New Mobility has been the leading magazine dedicated to Disability Culture and Lifestyle. Written by and for wheelchair users, New Mobility provides a forum for sharing life experience. For learning what really works in daily life. For networking and becoming part of a community. New Mobility features a Post-Polio Forum in each issue, contributed by Dr Richard Bruno. |
Welcome to Philip's Quick Start Post Polio Information Website. If you have an interest in The Late Affects of Poliomyelitis, this website will be of interest to you. I am Philip Childress. I had polio in 1949 at the age of 13. In 1993 I experienced respiratory failure while recovering from pneumonia. It was diagnosed as due to Late Effects of Poliomyelitis. Shortly before going to the hospital, I had connected to an Internet provider. When I returned home, I started researching the subject of post polio syndrome on the Internet. I wanted to learn about the condition, but I had no idea of what I should be looking for, and I spent too much time bumbling around in the dark. That experience prompted me to create this guide, the one I would liked to have had in 1993. |
This library database contains over eight hundred and fifty articles published in medical journals from around the world. Abstracts on the site date back to 1983 and represent a selection from the larger database. |
There are currently over 100 articles in this online Library. Selecting an article title in any of the catalogues will take you to the complete text of that article. |
Tom Dempsey's Polio Survivors' Page, the first Post-Polio site to appear on the WWW back in March 1993, was withdrawn from service some years ago. We have produced the following catalogue of articles referenced Tom Dempsey's Polio and Post-Polio Information Packet originally available at that site. Fortunately, the Lincolnshire Post-Polio Library also has some of those articles and the catalogue entry will be for the 'Lincolnshire copy'. |
When Franklin Roosevelt contracted infantile paralysis (polio) and was left unable to use his legs, he concentrated his efforts to raising money for the dreaded disease. The original Birthday Balls were fundraisers to benefit the March of Dimes, which FDR founded as the National Foundation for Infantile Paralysis. These pages are a fascinating glimpse at how the war against polio was waged in the USA. |
Extensive library of articles by Dr Henry Holland. Henry is a polio survivor, a board certified psychiatrist, and Clinical Professor of Psychiatry in the School of Medicine of the Medical College of Virginia of Virginia Commonwealth University in Richmond, Virginia, USA. |
Extensive library of articles about post-polio, in PDF format. |
"Disabled Village Children" is a book of information and ideas for all who are concerned about the well-being of disabled children. It is especially for those who live in rural areas where resources are limited. But it is also for therapists and professionals who assist community-based programs or who want to share knowledge and skills with families and concerned members of the community. Written by David Werner with the help of disabled persons and pioneers in rehabilitation in many countries, this book has been prepared in a style and spirit similar to the author's earlier works, "Where There Is No Doctor" and "Helping Health Workers Learn". It gives a wealth of clear, simple, but detailed information concerning most common disabilities of children: many different physical disabilities, blindness, deafness, fits, behaviour problems, and developmental delay. It gives suggestions for simplified rehabilitation, low-cost aids, and ways to help disabled children find a role and be accepted in the community. Above all, the book helps us to realize that most of the answers for meeting these children's needs can be found within the community, the family, and in the children themselves. It discusses ways of starting small community rehabilitation centers and workshops run by disabled persons or the families of disabled children. Over 4,000 line drawings and 200 photos help make the information clear even to those with little formal education. |
Mavis Matheson MD had polio in 1952. Her left leg was severely wasted and she had neck and shoulder weakness. She "recovered completely" and led a full and busy life until she developed post-polio weakness and fatigue 40 years later. She practiced medicine until 1993. Today, she uses a power chair outside her house and CPAP at night. Visit this site for links to some of Mavis' published articles on polio and post polio syndrome. |
A comprehensive discussion of polio and its late effects, with links to other resources. |
Lincolnshire Post-Polio Network Directory of Polio Survivors Web Sites. The only criteria applied to selection of links for this section of the Lincolnshire directory is that the site author should be a polio survivor who has created his/her own web sites or pages. The sites are as diverse in content as polio survivors are diverse in character and interests. |
A Fact Sheet on PPS from the National Institute of Neurological Disorders and Stroke (NINDS) in the USA. |
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